Events
All events are FREE! Please pre-register below for the zoom links.
Are you hosting an event in support of RB families? Let us know, we are happy to promote new initiatives that connect RB families across the country.
Is there a topic you’d like us to cover in a virtual gathering? Let us know
Upcoming Events:
Virtual RB Community Symposium
Saturday April 5, 2025 from 11am to 2pm EST
Join us for a day of insightful presentations from healthcare professionals, researchers and survivors.
Register HERE
Eye Loss Support Group Virtual Meetup
Saturday, 3 May 2024
CNIB Community Hub, Toronto
The eye loss community gathered to share stories and experiences of what it’s like to lose an eye, wear a prosthetic eye or have partial vision.
Co-hosted by: Canadian Retinoblastoma Society, 1icollective, Striowsky Prosthetic Eyes
Annual RB Family Picnic
Saturday June 7, 2025 at Marie Curtis Park @ 2 Forty Second St. (Etobicoke)
Register HERE
Virtual RB Community Gathering
October 2025 - Details coming soon
Eye Loss Support Group Virtual Meetup
November 2025 - Details coming soon
Past Events:
Calgary RB Gathering with Dr. Gallie
December 14, 2024 from10:30am to 2:00pm
Bankers Hall East (855 - 2nd Street SW), Calgary, AB
RB families in AB and SK gathered in Calgary to celebrate Dr. Gallie, as she is not renewing her Alberta medical license, Dr. Gallie presented on DEPICT Health, a great resource for Alberta patients as they navigate treatment and checkups in her absence.
Virtual Meetup: Eye to Eye: Sharing our Stories
November 26 at 7:30pm EST
Preserving your vision talk with Dr. Neety Kochar, prosthetic eyes 101 with ocularist Andra Striwoski, and “my eye story” workshop with Genevieve Savoie.
Watch recording HERE
Virtual Gathering: RB Genetics
Thursday, November 14 at 7:00pm EST
We explored RB Genetics with special guest Tristan Charlinski, Genetic Counsellor at Sick Kids.
Watch recording HERE
Annual Retinoblastoma Family Picnic
Saturday June 8, 2024
Rb families met up at Marie Curtis Park to socialize, share stories and enjoy an afternoon of fun family activities.
Eye loss community meetup
Saturday, 4 May 2024
CNIB Community Hub, Toronto
The eye loss community gathered to share stories and experiences of what it’s like to lose an eye, wear a prosthetic eye or have partial vision.
Co-hosted by: Canadian Retinoblastoma Society, 1icollective, Striowsky Prosthetic Eyes
Virtual Gathering: Parents, Patients and Caregivers
Thursday February 29, 2024
Parent experience story with Lindsey Robinson, followed by a group discussion for Parents, patients and caregivers.
Eye Loss Community Meetup
People who relate to the experience of eye loss gathered in person for a friendly meetup to share our stories and experiences.
November 18, 2023
CNIB Community Hub @1525 Young St. (Toronto)
Virtual Gathering:
Navigating support for students with vision loss within the Ontario Education System.
September 28, 2023
Guest speakers: Jennifer Vastagh, Vision Teacher Specialist at Waterloo Region School Board and Beth Conley-Edwards, Educational Coordinator and Consultant, Vision Resource Services and Outreach Programs at W. Ross Macdonald School
Annual RB Family Picnic
June 3, 2023
11am to 3pm EST
Marie Curtis Park, Etobicoke
Kids Virtual Gathering
April 29, 2023
10am to 11am EST
AGM and Volunteer Information Session
March 23, 2023
Virtual Gathering: Patients & Caregivers
February 27, 2023
Topic: Patient and Caregivers
2023 Retinoblastoma Research Symposium
(Toronto, ON)
Jan 28, 2023 - CRBS Survivor Panel
Jan 29, 2023 - CRBS 20th Anniversary Celebration
Virtual Gathering: Psychological and emotional outcomes for RB survivors
September 25, 2022
Dr. Pam Mosher, Psychiatrist / Psychosocial oncologist at Princess Margaret Cancer Centre
Molly Hammerberg, Retinoblastoma Survivor
Annual Retinoblastoma Family Picnic
June 4, 2023
We were so happy to host our first in-person event since the pandemic. A big thank you to everyone who helped make this event possible and to everyone who attended: long-time CRBS Members and new RB families too. It was great to see everyone on this beautiful sunny day.
AGM and Child Life Presentation
April 2, 2022 (virtual)
Special guest: Morgan Livingstone, Certified Child Life Specialist
Click HERE to see the presentation.
Virtual gathering: Survivor Stories
February 17, 2022
2022 Retinoblastoma Research Symposium
January 15, 2022 (virtual)